1	"The Expert Patient:" The Expert Patient: How Patients and Health Care Professionals can benefit David Turner
2	The Expert Patients Programme “A new approach to Chronic Disease Management for the 21^st Century” (Liam Donaldson - Chief Medical Officer 2001)
3	Chronic Disease Self-Management Course (CDSMC) Self-management is: dealing with the consequences of the illness concerned with problem solving, decision making and confidence building a self-management course does not conflict with medical advice patients and health professionals are in partnership
4	“A disease is a condition of the body. An illness is the way a disease interferes with everyday living. Doctors are experts in disease, only patients can experience the consequences of illness” John Donaldson (Royal Collage of Physicians) 2001
5	Brief History of the Chronic Disease Self-management Course Kate Lorig – Stanford Model (1970’s) Challenging Arthritis (1994) Expanded in voluntary sector Stanford (Generic) Model put forward as an example of good practice 1998 – White Paper ‘Saving lives: Our Healthier Nation’ proposes introducing the programme in NHS 2000-Commitment to introduce Expert Patients Programme made in the NHS Plan April 2002-staff with long-term conditions employed Pilot period runs from 2002-2004 Aim is to have courses running in all PCTs by 2004
6	Who is the course for? Adults of any age who have any long-term health condition e.g. arthritis, asthma, back pain, cancer, diabetes, heart conditions, hormonal conditions, lung conditions, ME, MS, Parkinsons, stroke. People often have more than one condition
7	Why do we need a programme of this type ? “Patients are more than their illness”
8	Effects of experiencing a long-term health condition loss of independence loss of confidence anger/frustration unpredictability effects of medication stress/anxiety/depression isolation fatigue pain fears for the future
9	Symptom/Pain Cycle
10	Course Content goal setting/action planning problem solving dealing with emotions fatigue management better breathing relaxation exercise pain management cognitive symptom management healthy eating communication planning for the future
11	Increased use of self-management techniques: Exercise Relaxation Goal setting Time management pain fatigue depression anxiety
12	How does the Self-management course achieve all this? led by two tutors who have experience of managing a long-term condition offers a toolkit of self-management skills intervenes in the symptom / pain cycle increases confidence by gradual small improvements provides a supportive environment with others who understand
13	Which patients will benefit? anyone with a long-term health condition anyone struggling to manage their condition anyone who feels that the disease has taken over their life
14	Benefits to Patients improved communication with professionals more community involvement greater life satisfaction greater sense of purpose improved general health increased confidence decrease in physical deterioration fewer GP & hospital appointments reduction in levels of pain less depression/anxiety less fatigue
15	Additional Benefits to Health Professionals Patients have more confidence managing their own condition Patients are more resourceful, not asking “What should I do?” but rather “Do you think this will work?” Patients make fewer appointments and use them more constructively Reduction in levels of medication GPs report expert patients are more satisfying to clinicians (EPP website)
16	Chronic Disease Self-management Course free of charge to participants one two and a half hour session a week for six weeks locally held in a community venue 10-16 participants free self-management reference book
17	Why a Generic Course? Patients with different conditions share many of the same problems It is the consequences of the illness that are often more problematic than the disease itself Social rather than Medical model
18	Volunteer Tutors Success of the programme will largely be dependent on the successful recruitment and training of suitable volunteers
19	The Right kind of volunteer have a long-term health condition with experience of effective self-management be a good listener, facilitator & communicator have enough time to commit to the programme be willing to learn and attend training
20	Tutors Two people who live with a long-term health condition themselves Trained Scripted manual Assessed Supported Valuable experience
21	Contacts Website: www.expertpatients.nhs.uk Felicity Hearn, EPP Senior Trainer & David Turner, EPP Trainer: tel 01684 612785