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‘Ignorance is bliss’ |
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‘Knowledge is power’ |
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Sexual stereotypes |
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The problem with syndromes - internet |
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‘Forewarned is forearmed’ |
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Protection |
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How and what parents are told |
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guilt, confusion - what does it mean - fears for
the future |
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Accurate information |
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Fears that something is seriously wrong |
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Meaning of information |
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10-11 |
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cells slightly different - additional X
chromosome and what it means |
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not an illness |
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12 |
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fertility, masculinity - testosterone |
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Privacy versus secrecy |
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1/600 men |
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few diagnosed before puberty |
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gynaecomastia, genitals, tall stature, body
proportions, obesity, muscle development, minor motor deficit, fertility |
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introverted, quiet, unassertive, passive,
tendency to withdraw from group activities |
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Language difficulties, learning problems,
behavioural difficulties, lack of co-ordination |
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34,380 screened (1967-79), follow-up 1995 |
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19 XXY - parents not told fertility status |
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42% speech therapy, 77% difficulty learning to
read, mathematical ability relatively poor, short and long term memory |
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difficulty relating to peers and siblings |
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psychological difficulties 26% (controls 9%) |
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Identity development - separation - peer
relationships |
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Feeling different - why me? |
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Fears about relationships |
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Parents concerns different from childs |
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beliefs, values, understanding, experiences |
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who do you talk to ? |
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Children learn from their families |
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values,
beliefs, skills & strategies |
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Listen |
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language development, bullying |
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Contain - individual time |
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Model |
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Know the system |
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information to school - environment -
collaboration - interest & curiosity - statementing |
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sources of support |
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Expressive Language & Retrieval |
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putting thoughts, ideas & emotions into
words |
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finding the right word - building vocabulary,
categories |
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offering choices rather than open-ended
questions, multiple choice |
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Auditory recall |
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visual cues, illustration, gesturing |
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Self-esteem |
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Social skills - social cognition |
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Assertiveness |
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coloured glasses |
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locus of control |
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feelings, goals, metaphors |
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focus on positives |
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