We invite you to take part in a research study sponsored by the USA National Institutes of Health and the Johns Hopkins University Bloomberg School of Public Health.  The purpose of this study is to learn more about how adolescents and adults with Klinefelter syndrome (XXY) think and feel about living with XXY.  

Individuals with Klinefelter’s syndrome (XXY) who are 14 years or older are needed to take part in this study.  Participation involves one survey that takes 30-40 minutes to finish.  It can be taken online or a paper copy can be mailed to you.  
 
If you have Klinefelter’s syndrome and are 18 years or older, please go to www.surveymonkey.com/xxystudy to learn more about our study and to take part.  

If you are 14-17 years old and have Klinefelter’s syndrome, you will need a parent or guardian to give his/her permission for you to take part.  Please ask a parent or guardian to go to www.surveymonkey.com/xxyparent to learn more so that we can give you access to our survey.   

If you are the parent of an adolescent with Klinefelter’s syndrome who is 14-17 years old or who is still your dependent, please go to www.surveymonkey.com/xxyparent to learn more and to share this information with your son.  

If you have any questions, please contact Amy Turriff at [email protected].

Thank you!