How did it all begin & What do we do?
Registered Charity No: 1058319
The Klinefelter's Syndrome Association was founded in 1990 by Sue Cook and
Steve Hammett. Today it has approximately 140 members throughout the UK &
Ireland. These members are the adults, teenagers, & children who have the
Syndrome as well as their parents and partners.
The Association achieved Charitable Status in 1996 and continues to grow in
accordance with the aims defined in its Constitution. Essentially it is the main
source of advice and support for its members, many of whom have found medical
practitioners & other care professionals to be ill-informed.
Objects of the KSA
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To preserve & protect the health & promote the welfare of persons affected
by Klinefelter's and related Syndromes.
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To advance the education of the medical profession, other public and
private bodies and the general public on the subject of Klinefelter's and
related syndromes and their implications for the family.
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Promote research into the management of Klinefelter's and related
Syndromes and to publish the results thereof and to support individuals and
organisations promoting research into Klinefelter's and related Syndromes.
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Derbyshire
offers breathtaking scenery and a range of walks for all abilities.
Each year the KSA organises Activity Weekends in Derbyshire where you can
have the privilege of meeting others, just like you, who live with KS on a
daily basis.