Klinefelter's Syndrome Association

Registered Charity No: 1058319

How did it all begin & What do we do?

The Klinefelter's Syndrome Association was founded in 1990 by Sue Cook and Steve Hammett. Today it has approximately 140 members throughout the UK & Ireland. These members are the adults, teenagers, & children who have the Syndrome as well as their parents and partners.

The Association acheived Charitable Status in 1996 and continues to grow in accordance with the aims defined in its Constitution. Essentially it is the main source of advice and support for its members, many of whom have found medical practitioners & other care professionals to be ill-informed.

Objects of the KSA

· To preserve & protect the health & promote the welfare of persons affected by Klinefelter's and related Syndromes.

· To advance the education of the medical profession, other public and private bodies and the general public on the subject of Klinefelter's and related syndromes and their implications for the family.

· Promote research into the management of Klinefelter's and related Syndromes and to publish the results thereof and to support individuals and organisations promoting research into Klinefelter's and related Syndromes.