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How we
can help | Our Newsletter |
Our Publications |
About us
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| The KSA has been
supporting people in the UK with Klinefelter's Syndrome (KS), and their
families and friends, since 1990. Our members are about as diverse as
in any other support group; as well as those with Klinefelter's Syndrome
themselves, we have parents, grandparents, wives, brothers, sisters, carers
and friends. Our aim is to assist everyone who comes into contact with KS. Of
course, that goes beyond those who live with KS everyday, this could be a
teacher searching for ways put together an action plan for a boy with KS, a
doctor seeking to put a patient in contact with someone with more
experience, or anyone else who needs to know more.
We support Adults (& their partners) as well as Children (& their families)
who have Klinefelter's Syndrome (KS) and its variants. Our Members come from all
over the UK and Ireland. We are both a source of information and a self-help
Support Group. Members have the luxury of being able to meet others with
similar experiences, to share what we have learned and then learn more
together. |
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 Probably the biggest event in the
KSA year is our Annual Conference. This usually takes place in the
midlands in order to reduce the distance that the average member has to
travel - recently this has been in Coventry.The Annual Conference, as
well as hosting the charity's AGM, is an opportunity for us to invite
keynote speakers on the most current issues that we face.
more information... Another way that
we can help is to put those with a recent diagnosis in contact with others
living nearby. Particularly valuable for parents, this facility gives
you someone to talk to who can answer those initial first questions,
particularly as an internet search on KS throws up much more than the KSA
website. |
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| Several times a year we publish our
newsletter to keep our members informed of news, conferences, developments
and fundraising. We also publish letters from members which give an
insight into the issues and situations that so importantly inform our
research and support activities. |
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 Consultation
with some of the leading medical authorities in the UK enables the KSA to
bring its members the most up-to-date information we can. This
information is then distributed to enquirers, and, perhaps more importantly,
GPs and family doctors.
More information... |
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