Klinefelter's Syndrome
Association UK
Charity Number 1058319 (Keywords: XXY, 47XXY Klinefelter)
The KSA has been supporting people in the UK with Klinefelter's Syndrome (KS), and their families and friends, since 1990. Our members are about as diverse as in any other support group; as well as those with Klinefelter's Syndrome themselves, we have parents, grandparents, wives, brothers, sisters, carers and friends.
Our aim is to assist everyone who comes into contact with KS. Of course, that goes beyond those who live with KS everyday, this could be a teacher searching for ways put together an action plan for a boy with KS, a doctor seeking to put a patient in contact with someone with more experience, or anyone else who needs to know more.
We support Adults (& their partners) as well as Children (& their families) who have Klinefelter's Syndrome (KS) and its variants. Our Members come from all over the UK and Ireland. We are both a source of information and a self-help Support Group. Members have the luxury of being able to meet others with similar experiences, to share what we have learned and then learn more together.
Probably the biggest event in the KSA year is our Annual Conference. This usually takes place in the midlands in order to reduce the distance that the average member has to travel.The Annual Conference, as well as hosting the charity's AGM, is an opportunity for us to invite keynote speakers on the most current issues that we face. more information...
Another way that we can help is to put those with a recent diagnosis in contact with others living nearby. Particularly valuable for parents, this facility gives you someone to talk to who can answer those initial first questions, particularly as an internet search on KS throws up much more than the KSA website.
All information on this site is correct to the best of our knowledge, however the KSA (UK) recommends that you verify all facts before acting upon them. Medical treatment and advice should always be confirmed by your GP, consultant or family doctor.
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