Klinefelter's Syndrome
Association UK
Charity Number 1058319 (Keywords: XXY, 47XXY Klinefelter)
This is a new page hoping to act as a quick-link to answers for commonly asked questions about where to find more information. Please feel free to submit ideas for this page as it is still in its infancy.
Obtaining a Statement of Special Education Need
A tough job, but members have found the following of help:
Rathbone Special Education Advice:
This website is currently being updated, but their Special Education Advice Line should be able to help o a number of issues. In the past they have offered a range of documents as well as a "pack" to help obtain a statement.
http://217.205.231.250/website/programmes/prog-seal.php
Or Telephone 0800 917 6790
Access to Disability Living Allowance
Cerebra, who support children & young people with brain injuries, have produced an excellent guide to accessing the DLA. There is a short test, or you can download their more weighty document (allow a minute or two for it to download). This is probably one of the best guides that we have seen for this sort of application & with just a little interpretation in a KS context should prove a tremendous help. Access it via the following page:
http://www.cerebra.org.uk/DLAMain.html
All information on this site is correct to the best of our knowledge, however the KSA (UK) recommends that you verify all facts before acting upon them. Medical treatment and advice should always be confirmed by your GP, consultant or family doctor.
Copyright ©Klinefelter's Syndrome Association UK
The KSA has tried to make this site as easily accessible to screen-readers and other aids as possible. Please email us if you experience any difficulties with its use and we will endeavour to rectify the situation. Read our Accessibility Statement