Klinefelter's Syndrome Association UK

 

Charity no. 1058319

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Possible signs and symptoms associated with early diagnosis of Klinefelter's Syndrome include:

• Speech and language development disorders
• Short attention span/easily distracted
• Lack of agility & dislike of physical games
• Passive, shy
• Trouble with self-expression
• Specific learning difficulties
• Long limbs
• Testes fail to develop

 

Possible signs and symptoms associated with late diagnosis of Klinefelter's Syndrome include:

• Tired or lethargic for no apparent reason
• Infertility
• Depression
• Low sex drive
• Body & facial hair is sparse
• Poor muscle bulk
• Evidence of Osteoporosis
• Breast development
• Low self-esteem
• Difficulty remembering recent conversation
• Poor communication skills

 

About the Klinefelter’s Syndrome Association and the condition

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The Klinefelter's Syndrome Association (KSA) was founded in 1990 and achieved Registered Charity status in 1996. It exists to support all those affected by Klinefelter's Syndrome (KS) whether they are men and boys who have the syndrome, or their wives, partners, parents, grandparents, brothers, sisters, carers and friends.

Klinefelter's Syndrome is a common condition found in around 1 in 650 live male births and is a congenital condition present from conception. The condition is caused by the presence of one or more additional 'X' chromosomes.

The Association seeks to assist everyone who comes into contact with Klinefelter's Syndrome. Of course, that goes beyond those who live with KS everyday; this could be a teacher searching for ways to put together an educational action plan for a boy with KS, a doctor or other health professional seeking to put a patient in contact with someone with more experience, or anyone else who needs to know more.

In seeking to preserve and promote the health and the welfare of all persons affected by Klinefelter's Syndrome the Association seeks to raise the profile of the condition with the medical profession, other public and private bodies and the general public so that all understand its implications, not only for the individual affected, but also for all those with whom they have contact during their lives.

All information on this site is correct to the best of our knowledge, however the KSA (UK) recommends that you verify all facts before acting upon them.  Medical treatment and advice should always be confirmed by your GP, consultant or family doctor.

• In June 2008 the KSA acquired XXYTalk.com - the international independent talk forum for those affected by Klinefelter's Syndrome - and its associated websites.

 

• One of the associated websites is www.xxyuniversity.com  here viewers can purchase T-Shirts, Shorts and Mugs promoting XXY.

 

• Help spread awareness of Klinefelter's Syndrome.