Co-morbidity increase with KS
Recent research has demonstrated a higher likelihood of hospitalisation in
men with KS, although this seems greatly reduced if correct doses of
testosterone are maintained. (Dr. Anders Bojesen)
New Testosterone Therapies:
Launched by Ardana, a Scottish Pharmaceutical organisation,
STRIANT is a mucoadhesive buccal tablet, i.e. put into the mouth, it adheres
to the gum and slowly releases its dose over 12 hours. The tablet is
applied every 12 hours in different positions in the mouth. Further
details will be posted here, see your endocrinologist if you think you may be a
suitable candidate. So far there is no information on the
Ardana
Website so we'll keep you posted. Click
HERE for a brochure. NOTE: there was a little more information on this
at our conference in 2004.
Bentley Pharmaceuticals has brought out a new gel - TESTIM from Ipsen, details
are few so hopefully their reps will give us more to go on soon. In the
meantime we have this
Press Release.
Schering have brought out a 3-monthly injection - NEBIDO, again details
from experienced members are few, so in the meantime here is another
Press Release. It promises to reduce the usual fluctuations
experienced with normal injection regimes and preparations.
Education Help
The first draft of the KSA guide for teachers (& parents involved in their
son's education) has been posted up in the Education
and Download pages. The booklet contains
background on the possible effects of KS on education and some guidelines for
teachers. It has a long way to go and will eventually be quite a size - at
the moment it is just 11 pages long. You may wish to print off a copy and
pass it to your son's teachers. We have deliberately left some more
medical information out (potential for teasing, in the wrong hands) but it will
eventually also include the current research into the effects of exogenous
testosterone supplementation upon learning. Click
HERE
for a draft copy
In the Telegraph Newspaper, on the day of our 2004 Conference:
Should the current program of "inclusion" be used to create a cheap means of
isolating our needy kids from the right education? Several of our KSA
kids have been to this excellent school and benefited enormously. Read
about it in this article in the Telegraph 02 Oct 04
Text Only (96kb) or
With Pictures (1.1Mb)
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