Klinefelter's Syndrome
Association UK
Charity Number 1058319 (Keywords: XXY, 47XXY Klinefelter)
Publications & Further Reading
The KSA knows from experience how hard it can be to get hold of honest, accurate, unbiased and contemporary information about Klinefelter's Syndrome. To counteract this, in addition to our many other sources of information and help, we have produced two guides filled with scientific background, advice & useful information. The booklets have been compiled with the help of medical professionals and are the start of a larger series we have planned.
As well as general information on KS the book tackles issues that specifically affect adults with KS, including symptoms, testosterone supplements, surgery, maintaining healthy bones and what the future holds.
Whether diagnosed ante-natally or during the school years, a boy with KS can be given every chance for success. This booklet tackles medical and educational issues and gives guidelines to supporting parents through these most demanding of years.
Currently just an unfinished 11 page draft, this research paper gives advice to parents & teachers into how to improve learning for boys with KS. Backed up by references &, in places, rather technical, it aims to provide the framework for a parent/teacher approach to developing an individual learning plan.
The A-Z Reference Book of Syndromes & Inherited Disorders.
Klinefelter's Syndrome: An orientation.
National Society of Turner Contact Groups (Denmark)
Klinefelter's Syndrome in Childhood, Adolescence & Youth: a genetic, clinical, developmental, psychiatric & psychological study.
Understanding Klinefelter's Syndrome: a guide for XXY males and their families.
The Genetic basis of Common Diseases.
Oxford monographs on Medical Genetics. 1992.
Oxford Textbook of Medicine.
Sir David Weatherall et al.
Oxford University Press 1996
The above books may well be available via inter-library loan, or by special request, ask your local librarian for help. Photocopies of research papers are also usually available from your library, allow up to 14 days for arrival and expect to pay up to £3 in some libraries.
The Turner's Syndrome website has a list of research publications available for those who are familiar with Scientific Journal publications. It can be accessed HERE. It prints well and could be taken to your local library or University Resources Centre
There is a good book of facts on the Turner's Syndrome website. This great site has simple, yet valuable info, and reflects the good work put in by this Danish organisation. Turners' Syndrome is, in some ways, analogous to Klinefelter's Syndrome but is the female equivalent 45X0.
In the past, before we had our new "Guide for..." series of booklets, we issued a booklet written by Dr S. G. Ratcliffe, the renown guru of KS in young people. This booklet is reproduced here as a web page an e-Book and as a printable PDF document.
Guy's & St. Thomas' Hospital (NHS) produce a short leaflet for their doctors to distribute. Click HERE to open their download page in a new widow
All information on this site is correct to the best of our knowledge, however the KSA (UK) recommends that you verify all facts before acting upon them. Medical treatment and advice should always be confirmed by your GP, consultant or family doctor.
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